Making Disability a Priority in Health Equity: How Do We Accelerate Change?

In this webinar, Mai Pham, Executive Director of the Institute for Exceptional Care (IEC), shares how IEC is working to make healthcare better and safer for people with intellectual and/or developmental disabilities (IDD) so they and their families can lead their best lives.

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Making Disability a Priority in Health Equity: How Do We Accelerate Change? with Institute for Exceptional Care

from Rx Foundation’s Power is a Social Determinant of Health series

Session description: Mai Pham, founder and leader of Institute for Exceptional Care (IEC) and mother of an autistic young man, will share how IEC is working to make healthcare better and safer for people with intellectual and/or developmental disabilities (IDD) so they and their families can lead their best lives. IEC has made some surprising discoveries about “authentic engagement,” what makes for effective change agents, and the unique opportunities for IEC to drive change as it straddles being both a healthcare insider “do-tank” and a stakeholder organization. These discoveries are informing IEC’s launch of an IDD Advocate Corps that will bring together professionals within healthcare who want to drive change in their own organizations to improve care for people with disabilities. Pham looks forward to engaging the group in discussion about how this model and new kinds of partnerships could be applied to other areas of advocacy for individuals, families, and communities that are not adequately served or even harmed by the status quo.

To watch the full webinar, please fill out our Google Form to receive an email with a direct link and password within 1-3 business days.

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To watch the full webinar, please fill out our Google Form to receive an email with a direct link and password within 1-3 business days.

Session Highlights

Equity ≠ The Same. People with disabilities show how person-centeredness and universal design can co-exist in healthcare
Stigma and misunderstanding results in 80% of physicians feeling insecure about giving high quality care to people with disabilities
Black/Brown and poor people with IDD have even worse health outcomes and maternal mortality rates
Making healthcare safe and inclusive, so people with IDD are treated with dignity = (1) pay for better care, (2) scale care models that address people’s priorities, and (3) train more capable and caring clinicians
Building relationships and trust with IDD populations is critical. IEC brings together the IDD community and healthcare leaders to collaboratively problem-solve and advocate for sustainable change at scale
Action to Build Clinical Confidence and Culture (ABC3) is a multi-stakeholder action collaborative that will scale strategies nationally to engage and better prepare general clinicians for serving people with IDD
Seamless Care Alliance of Nassau & Suffolk (SCANS) is an on-the-ground pilot program, based on Long Island, aiming to reduce emergency department (ED) visits, improve ED care, and ease transitions back to the community. They are developing an phone app for the Apple Store to provide a digital snapshot for clinicians of IDD patient needs – and its development is driven by the IDD community
A Universal Design framework supports equity & dignity and acknowledges & normalizes that people have different needs, removing unnecessary barriers and leaving fewer people behind
Deeply-held, status quo values in healthcare are in conflict with universal design – e.g. prioritizing standardization over diversity or complexity

Speaker

Hoangmai (Mai) H. Pham, MD MPH (she/her)

President and CEO of Institute for Exceptional Care (IEC), is a general internist and national health policy leader and mother to two beautiful young men, one of whom is autistic. Dr. Pham was previously Vice President, Provider Alignment Solutions at Anthem, Inc., responsible for value-based care initiatives at the country’s second largest health insurance company. Prior to Anthem, she served as Chief Innovation Officer at the Center for Medicare and Medicaid Innovation, where she was a founding official, and the architect of Medicare’s foundational programs on accountable care organizations and primary care. She has published extensively in the medical literature on provider payment policy and its intersection with health disparities, care coordination, quality performance, provider behavior, and market trends. Dr. Pham serves on the boards of Atlantic Health Systems and the Coalition to Transform Advanced Care, and the National Advisory Council for the Agency on Healthcare Research and Quality. She also serves on Faculty at the Institute for Healthcare Improvement. Dr. Pham earned her A.B. from Harvard University, her M.D. from Temple University, and her M.P.H. from Johns Hopkins University where she was also a Robert Wood Johnson Clinical Scholar.

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